Tratamento Fora de Domicílio e transplante de medula óssea: experiências da população usuária

Abstract

The present work has as an objective: identity and analyze the easiness and difficulties faced by users -patients/ family members- to access the Treatment Out-of-Home Program after performing a bone marrow transplant in a Bone Marrow Transplant Center of Sistema Único de Saúde (Unified Health System). Moreover, as specific objective of the work: reconstruct the social and theoretical-critical history of health policy in Brazil, introduce the topic of bone marrow transplant specifically on the state of Rio De Janeiro, to establish a profile of patients and their families who were admitted to a Transplant Center of Sistema Único de Saúde (Unified Health System) for a bone marrow transplant in the year of 2019 that were living away from home, identify the possibilities also the limits of those regarding the use of TFD Program, as well as problematize the functioning and the impact of the program on user's lives. The basis of the methodology used was a critical work and the gathering of data collection from interviews with patients/family members together with analysis of medical records, in addition to the bibliography review on the subject. This area of research was selected in order to present the high demand for assistance focused on orientations and referrals from the Social Service relative to Out-of-Home Treatment Program, which sharpened the choosing of this subject for the theme.