Famílias e atendimento às necessidades de saúde de crianças com condições crônicas e deficiências: as repercussões do familismo na saúde

Abstract

This study aimed to analyze how user families of a university pediatric hospital access health and social services for children and adolescents with chronic health conditions and disabilities, based on the familism present in social policies. This is a qualitative research, which used exploratory descriptive research and the analysis of patients' medical records. Through this document, we pretend to identify the family configuration, who acts as the main caregiver, where participating families live, the health and social needs of the children and adolescents attended at the institution, the possibility of access health care and social services, identifying how occurs this access, otherwise, verifying the circumstances that make it difficult. After obtaining the data, we correlated the results with the theoretical framework, confirming the accountability for health care and social needs directed to families by the State and, in the face of scarcity and unavailability of public services directed to children and adolescents assisted by the hospital, there are violations of children and adolescent’s rights. We also concluded that the vast majority of women users of the institution bear the costs of care work, which generates impacts on gender and racial inequality, with familism social policies being important agents in the work overload directed at them.